Committee of Recommendation
In March 2014 the Sudden Deafness Foundation (Stichting Plotsdoven) in the Netherlands will have existed for 25 years. This will be a good time for the target audience to highlight their interests. The Foundation will do this in various ways during the jubilee year, in particular with an international conference in March 2014.
The Foundation is committed to people who suddenly or gradually become deaf. To suddenly, or in a relatively short time, lose one’s entire hearing is a traumatic experience. This deafness has radical, far reaching effects in all areas of life. Everything which once was normal is now hampered by communication problems. It's as if your world collapses, and has also been described as "living under a glass bell jar”. Many people become extremely isolated. The Foundation looks after their interests, stimulates contact between members and lets them know what is possible, provides information, support and relaxation.
It is estimated that 9,000 people in the Netherlands have become suddenly deaf or have lost their hearing in a relatively short time. Every year there are approximately 70 new cases of sudden deafness.
Sudden deafness can basically happen to anyone, at any age. Known causes are meningitis, a tumor, an infection, a traffic accident or a fall from a staircase. However, more often than not, the cause of sudden deafness is unknown.
The Foundation is increasingly on the move. More and more people who have become deaf are discovering and joining the Foundation.
For the 25th anniversary, the Foundation will focus primarily on making the general public more aware, both of sudden deafness as well as the anniversary. The Foundation especially wants to make the condition and its effects well known. Most people seem to know at least one person who either understands or hears very little, or who perhaps hears nothing at all. But for the vast majority of people sudden deafness is an unknown phenomenon and an invisible disability. By informing the public about sudden deafness, we hope that this will help people from becoming isolated due to misunderstanding and ignorance. A lot of attention will therefore be given to sudden deafness by various media sources during the anniversary year. A great effort will be made to stimulate scientific research into sudden deafness. In particular, the Foundation will promote the International three day Conference on 27th, 28th and 29th March, 2014, during which the 25th anniversary will also be celebrated.
The Committee of Recommendation is made up of the following people and organisations:
Mr. Kees Knol, Director of GGMD (Mental Health Care & Social Services) for the deaf and hard of hearing.
Dr. Jef Mulder, Ear, Nose and Throat Specialist.
Dr. Nadia Garnefski, University Professor, University of Leiden, Social Sciences Faculty, Clinical, Health and Neuropsychology Section.
Johan H.M. Frijns, MD PhD, Professor of Otorhinolaryngology, Department of ORL-HNS, Leiden University Medical Centre, The Netherlands
Mw. Marjos Dorjee, AC Brabant en Federatie van Nederlandse Audiologische Centra, FENAC.
Drs. P.P.B.M. Boermans, Audioloog LUMC.